Sjogren's & Lupus Foundation

  • Home
  • About
    • Press
    • Meet the Board
      • Dr. Jeffrey Sakai, Interim President and Board Chair
      • Dr. Miki Garcia, Vice President
      • Guy Sakamoto, Treasurer
      • Jolene Kageyama, Secretary
      • Dr. Kristine Uramoto, Rheumatologist
      • Dr. Monique Yuen, Naturopathic Physician
  • Gallery
    • Sjögren’s and Lupus Health and Wellness Conference 2018
    • Sjögren’s and Lupus Patient Conference 2017
    • Bowling Fun-Raiser June 4, 2016
  • Contact
  • Patient Conference 2018
  • Events
  • News
  • Lets Get Educated and Healthy
  • Lupus Warriors
You are here: Home / Lupus Warriors / HiSky Hats

August 23, 2015 By SLFH Staff Leave a Comment

HiSky Hats

Print Friendly, PDF & Email

skylarThirteen-year-old Skylar is a very inspiring, wonderful, amazing, strong little girl who has three life threatening diseases that affect her every day!

In 2009, she was diagnosed with a rare autoimmune disease known as HLH, Hemophagocytic Lymphohistiocytosis followed by a diagnosis of Job syndrome & Lupus which requires her to wear a hat at all times to protect her skin from ultraviolet rays.

In April 2013, Make-A-Wish Foundation helped her to launch her stylish hat line inspired by her medical conditions to protect her sensitive skin called HiSky. This was her wish to help others protect their skin from the harmful rays of the sun and to teach people about sun safety.

Skylar was selected as the 2013 Small Business Hawaii Entrepreneur of the Year! You can read about her at www.hawaiibusiness.com in the September 2013 issue…….”Child struggling with serious illness wished to create a business” by Ashley Shaffer.

She has had ongoing chemotherapy treatment at Kapiolani Medical Center for Women and Children. Her team of doctors are working hard to get her healthy! She just started her freshman year at Le Jardin and has an exciting year ahead of her! Mom Irma along with her brother and sister have been a great support for her!

For more information on how you can purchase Skylar’s stylish hats and how she lives her life day to day please visit her on facebook at Hisky , instagram at hiskyhats or email to [email protected].

Connect here to the Honolulu StarAdvertiser to read about her “Stricken child finds comfort in fashion with a line of hats” Features by Nancy Arcayna. December 11, 2014 www.staradvertiser.com

Always remember the importance of sun safety!

Filed Under: Lupus Warriors

Leave a ReplyCancel reply

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 38 other subscribers

Recent Posts

  • Sjögren’s and Lupus Health and Wellness Conference 2019….Registration is Now OPEN!
  • Sjögren’s and Lupus Support Group In August
  • Welcome Alice Inoue as a Speaker at the Conference on May 5!
  • Sjögren’s and Lupus Support Group 2018
  • Sjögren’s and Lupus Health and Wellness Conference 2018
  • Chef Kathi’s Turkey Chili
  • Chef Kathi’s Healthy Granola Bars
  • Chef Kathi’s Vegetable Bean Soup With Pancetta and Smoked Cheese
  • Chef Kathi’s Basic Chicken Salad
  • Eat Healthy With Chef Kathi

Recent Comments

  • BRIAN NITTA on Angelica Ponce
  • Melaca Cannella on Sjögren’s and Lupus Health and Wellness Conference 2018
  • Kenneth Ordenstein on Sjögren’s and Lupus Health and Wellness Conference 2018
  • Melaca Cannella on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • Lauren M. Imada on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • Melaca Cannella on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • Melaca Cannella on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • Elise Wager on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • Sharon Au-Curtis on Sjögren’s and Lupus Patient Conference 2017 “AGENDA”
  • AshLee on Angelica Ponce

Topics

Archives

Recent Posts

  • Sjögren’s and Lupus Health and Wellness Conference 2019….Registration is Now OPEN!
  • Sjögren’s and Lupus Support Group In August
  • Welcome Alice Inoue as a Speaker at the Conference on May 5!
  • Sjögren’s and Lupus Support Group 2018
  • Sjögren’s and Lupus Health and Wellness Conference 2018
Copyright © 2023 · All Rights Reserved. Sjogren's & Lupus Foundation Hawaii · Terms · Hosting by Koomohost
 

Loading Comments...